Peggy Wolf

Peggy Wolf

Monday, August 24, 2009

Disneyland/New Study-8/24

Hi All,

We had a great time at the Happiest Place on Earth!! We and a Zillion other people! It was really crowded. I'm glad we are saving our 3rd day for Sept or Oct. In spite of the large volume of people we road most of the rides we wanted to ride. We only missed a few! Thanks you so much to whoever blessed us with the passes and also thanks to the Vargas and Ramirez family's for blessing us with the use of the time share! And tons of thanks to Nana for filling in the blanks and helping with the kids!! It was so nice!! We have so many great memories! We can't stop talking about it all!!

Today it took me 3 1/2 hours to get to my Dr. appointment in Santa Monica. It usually only takes an hour and 10 min. They closed PCH due to a land slide with a tree down and power lines down too. It was a mess. I kept in contact with them to let them know I was on my way and would be there as soon as possible. I thought Dr. Rosen would be gone by the time I arrived but he ended up being able to see me. He was due somewhere else at noon. I was able to show him the new areas of growth I have noticed recently. The tumor on my chest has really bumped up. And the new small one on the left side of my neck has grown a lot. It is feeling really crowded on that side of my neck. It is all starting to get somewhat uncomfortable. He was concerned about the Superior Vena Cava. He said that is the vein that drains the blood from the brain. If the tumor is causing a problem there, I might not be able to do the next study. I was checked today with a CT scan and will find out tomorrow if I am able to start the new trial. I am just praying this is all God perfect timing. Earlier on with this study, the dose was way too high and the people were suffering from extreme nausea and vomiting. They have lower the trial dose from 300 mg's to 25 mg's. Recently moving it up to 50 mg's. That is what I would get at first. Possibly 100 mg's later. The side effects with this dose are minimal. The idea with this drug is targeted like the other one was. Hopefully it will go after the cancer and not damage the good stuff. That is my prayer!

Hope this provides you with a better idea on what is up and how to pray. These prayers have been my strength to keep on fighting. The kids have been battling with us! They are so brave and have so much faith! I am so proud of them!

Love to all, Peggy

1 comment:

Julie said...

I am so happy to hear that you guys had such fun and you get to go back!!! Wooohooo! We LOVE that place!!! I love love love you and am still praying! Hey, coffee somenight??