Pazopanib-5/14

Hi All,

Well I started the new trial drug today. So far I feel normal. No side effects. Hoping and praying that it will continue. Actually, I don't really know if I have the real thing at this point. I might have received the placebo. It's a blind study. After day 10 everyone gets the real thing for sure. Only the study knows, only the study will ever know. Not even my Dr. The only way I can gage it is if I have side effects this week and next. Or none this week and some next week. If I never get side effects, I will never really know. But what's a week and a half anyway. No biggy.

This week has been a lot of sitting around in Santa Monica. I did a bunch of screening on Monday to see if I qualified for the study. My calcium and white cells were low, but they fixed it with the neupogen and a calcium infusion. Tues I was hooked up to my holter monitor all day and all night Tues. and they didn't take it off until Wed. at 5 pm. It was obnoxious. I got a lot of reading done to say the least.

I was able to meet other people doing the same study this time. Lots of different stories. Lots of people with rare cancers. I guess this is the place were people like us end up. One guy was told his doctor could do nothing else for him. And after one round of his study drug his tumors decrease by 34%. And his treatment was way less harsh on his body. The chemo he was doing had him so beat down the doctor didn't think he could tolerate any more treatment. It was exciting to hear a good success story. He looked well and healthy to me.

I am expecting good things on this study! I am hoping to see the tumors stop growing and actually shrink significantly. Please keep praying with me. I have to do one more over nighter with the holter monitor next week. Pray for Larry and the kids. It is so disruptive to the family to be gone in the middle of the week. But, somehow, things always work out. Thank you Jesus!!

Love to all, Peggy

P.S. Lexie won her baseball game that I missed and Trinity started soccer and loved it!